RSS

John Mozer

JOHN MOZER’S STORY

Here’s my story. I was misdiagnosed with PM in 1990, and after 3 years of treatment with prednisone, my rhumetologist informed me that my PM had gone into remission. I was delighted and proceeded to put myositis completely out of my mind.

Then in 2004, I noticed that I was getting significantly weaker in the legs and arms and that I had several falls. I thought that this was due to my desk job and that I wasn’t getting enough exercise. So I joined a gym and paid for a personal trainer to work with me to improve my strength. After working out with the trainer 3 times a week for over a year, the two of us were frustrated by the fact that I had gotten no stronger.

During an annual physical in 2006 with my PCP, I mentioned this problem and he referred me to a neurologist. The neurologist did a few strength tests and then ordered a muscle biopsy. The results of the muscle biopsy confirmed that I have IBM. In fact, my neurologist believes that I have had IBM all along and that in my case it is progressing very slowly. However, it has certainly been progressing and I now need assistive devices to get up from chairs and toilets, go up steps, and to walk. I use a cane and stair lifts to get around the house and a rollator/walker when I am away from the house.

My neurologist has just given me a prescription to be evaluated for a power scooter. Right now, I don’t think I need a power scooter except for cases where I would have to be on my feet for long distances or long periods of time. We will see what they say. I should also add that I am very fortunate in that I have experienced no pain with my IBM.

 

2 responses to “John Mozer

  1. Deanna Cross

    September 1, 2013 at 1:00 pm

    Yes, you are fortunate, John. Well wishes.

     
  2. Linda Miller

    June 15, 2014 at 3:43 am

    Hi John, My husband is a Vietnam vet with IBM. He suspects Agent Orange as the cause. He also has no pain. Hope things are going well for you.

     

Let me know you were here... leave a comment

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

 
anthonysramblings

My ramblings of a mad world we live in. And some other helpfull topics will be added from time to time.

gingerfightback.wordpress.com/

Gingers, Poetry, Nonsense, Red Hair, Hope, Sausages

Unbagging the Cats

Myositis is a neuro muscular disorder

Get it. Write.

Your purpose in life is to find the purpose of life.

Lynette Noni

Embrace The Wonder

poemsandponderings

Poems and Ponderings by Jake

Desire Says ...

YOUR NUTS WITH SPRINKLES

AllThingsBoys Blog

Humor in the Humorless

butimbeautiful

You - philosophical, thoughtful, witty. Me - still thinks fart jokes are funny. We should DEFINITELY get together!

@RuthBH2Day

I write, I read . . . and I eat chocolate - probably more than I should . . . the chocolate that is

thekovies

Pondering lifes blessings one memory at a time

Menimèse Creare

Days of Yore & More

Guapola

Crazy is relative. Just ask my relatives. And music!

renxkyoko's space

Just another WordPress.com site

Pushing on a Rope

Working my way through midlife, one laugh at a time

The Chatter Blog

Living: All Day Every Day: Then Chattering About It

benzeknees

A frustrated writer, who is her own worst enemy

Gobetween Flames

WordPress.com site about my life and interests.

%d bloggers like this: