JOHN MOZER’S STORY
Here’s my story. I was misdiagnosed with PM in 1990, and after 3 years of treatment with prednisone, my rhumetologist informed me that my PM had gone into remission. I was delighted and proceeded to put myositis completely out of my mind.
Then in 2004, I noticed that I was getting significantly weaker in the legs and arms and that I had several falls. I thought that this was due to my desk job and that I wasn’t getting enough exercise. So I joined a gym and paid for a personal trainer to work with me to improve my strength. After working out with the trainer 3 times a week for over a year, the two of us were frustrated by the fact that I had gotten no stronger.
During an annual physical in 2006 with my PCP, I mentioned this problem and he referred me to a neurologist. The neurologist did a few strength tests and then ordered a muscle biopsy. The results of the muscle biopsy confirmed that I have IBM. In fact, my neurologist believes that I have had IBM all along and that in my case it is progressing very slowly. However, it has certainly been progressing and I now need assistive devices to get up from chairs and toilets, go up steps, and to walk. I use a cane and stair lifts to get around the house and a rollator/walker when I am away from the house.
My neurologist has just given me a prescription to be evaluated for a power scooter. Right now, I don’t think I need a power scooter except for cases where I would have to be on my feet for long distances or long periods of time. We will see what they say. I should also add that I am very fortunate in that I have experienced no pain with my IBM.