Mobile Tech Tips for Weak Hands

Technology has put the world into the palms of our hands through hand-held mobile devices such as the iPad, smartphone and e-reader. But when disability caused by muscle disease takes the “hand” out of “hand-held,” the tips and products detailed in this article may help.

Don’t hold it, mount it

“The No. 1 thing people can do to improve hand control of a device is to look for a way to mount it firmly so it doesn’t have to be held at all,” says RJ Cooper, engineer and owner of RJ Cooper and Associates, a California-based company specializing in special-needs software and hardware.

Popular mobile devices have a huge global market, so there are many relatively inexpensive accessories out there for holding your stuff.

Mobile Tech Tips for Weak Hands | Quest Magazine Online.

via Mobile Tech Tips for Weak Hands | Quest Magazine Online.

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Posted by on January 12, 2014 in Disability



Occupational Therapy: A Vital Role in Dysphagia Care

Take a look at this site for DYSPHAGIA

Occupational Therapy: A Vital Role in Dysphagia Care.

via Occupational Therapy: A Vital Role in Dysphagia Care.



Posted by on January 7, 2014 in Dysphagia


New Compound designated a breakthrough therapy by the FDA. It releases the brakes from muscle growth

A new antibody could dramatically boost strength and muscle mass in patients with cancer, chronic obstructive pulmonary disease COPD, sporadic inclusion body myositis, and in elderly patients with sarcopenia according to research published ahead of print in the journal Molecular and Cellular Biology.“Age-related loss of muscle mass is a major contributing factor to falls, broken bones, and the loss of mobility,” says co-corresponding author David Glass of Novartis, Cambridge, MA, one of the compound’s developers, along with first author Estelle Trifilieff, also of Novartis. “This study illustrates that we may have a powerful tool to prevent muscle wasting and promote growth.”

via New Compound designated a breakthrough therapy by the FDA. It releases the brakes from muscle growth.

via New Compound designated a breakthrough therapy by the FDA. It releases the brakes from muscle growth.


Posted by on December 24, 2013 in health, IBM





Posted by on December 23, 2013 in Reblog


Hoof Prints: ‘Grandpa,’ beloved coach talks about 70 years of swimming – The Stillwater Gazette

Graduated and married, Luke transitioned from a swimmer to a coach. He was hired as assistant coach at Hopkins-Lindbergh. Thirteen years later he became the new head coach of Hopkins when the high school split into two. In 1972 girls swimming started and so did the legacy. Luke holds the current Minnesota record for dual meet wins with 124. During that winning streak his teams won 13 conference championships, five regional titles, two state crowns and produced 14 all-American swimmers. He was named Coach of the Year in 1979 and again in 1980. In 1990 he was inducted into the Minnesota Coaches Swimming Hall of Fame.While still coaching, Luke was diagnosed with myositis, a progressive muscle weakening disease. He decided to not let it get the best of him and continued coaching. After retirement, he moved down to Florida with his wife and returned to swimming. A natural competitor, he joined the Mavericks, part of U.S. Masters’ Swimming, a league for older swimmers, and went on to the national meet. The Mavericks were national champions the two years Luke was on the team.

via The Stillwater Gazette | Hoof Prints: ‘Grandpa,’ beloved coach talks about 70 years of swimming – The Stillwater Gazette.

via The Stillwater Gazette | Hoof Prints: ‘Grandpa,’ beloved coach talks about 70 years of swimming – The Stillwater Gazette.

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Posted by on December 13, 2013 in Disability, myositis


My message to all my family and friends

Last night I choked on some food and eventually cleared my air ways after a couple of hours of coughing and spluttering. While I was struggling to breathe and my heart was pounding from a mild panic attack I realized that with this disease I could be called home at any time. Although I am fully prepared for that to happen I realised that I would not always have the opportunity to say what I would like to say to each and every one of my friends and family. I then spent the night lying awake feeling sorry for myself and I couldn’t wait to get to my computer this morning.


I started my day reading my favourite piece of scripture Psa 23 verses 4 and 5 and while meditating on these verses I received an email from a friend with another favorite prayer/poem of mine which so fitted my mood and encapsulated exactly how I was feeling. I want to share this heart rending poem with all my family and friends that I love dearly.  File it somewhere and when someone you know is called home, read it and know that they will be in your heart forever.




If tomorrow starts without me,

And I’m not there to see,

If the sun should rise and find your eyes

All filled with tears for me;


I wish so much you wouldn’t cry

The way you did today,

While thinking of the many things,

We didn’t get to say.


I know how much you love me,

As much as I love you,

And each time that you think of me,

I know you’ll miss me too;


But when tomorrow starts without me,

Please try to understand,

That an angel came and called my name,

And took me by the hand,


And said my place was ready,

In heaven far above,

And that I’d have to leave behind

All those I dearly love.


But as I turned to walk away,

A tear fell from my eye,

For all my life, I’d always thought,

I didn’t want to die.


I had so much to live for,

So much left yet to do,

It seemed almost impossible,

That I was leaving you.


I thought of all the yesterdays,

The good ones and the bad,

I thought of all that we shared,

And all the fun we had.


If I could relive yesterday,

Just even for a while,

I’d say good-bye and kiss you

And maybe see you smile.


But then I fully realized,

That this could never be,

For emptiness and memories,

Would take the place of me.


And when I thought of worldly things,

I might miss some tomorrow,

I thought of you, and when I did,

My heart was filled with sorrow.


But when I walked through heaven’s gates,

I felt so much at home.

When God looked down and smiled at me,

From His great golden throne,


He said, “This is eternity,

And all I’ve promised you.”

Today your life on earth is past,

But here life starts anew.


I promise no tomorrow,

But today will always last,

And since each day is the same way,

There’s no longing for the past.


So when tomorrow starts without me,

Don’t think we’re far apart,

For every time you think of me,

I’m right here, in your heart




Posted by on December 10, 2013 in IBM


Medical Mysteries: The woman in the chair

“I had just come back from Israel,” she tells me. “Oh, it was a very exciting trip! But,” she said, “I do remember being tired a lot. The hardest part was getting into and out of the bus.”That’s when things started, she said. “I had a rash on my legs. I went to see my doctor.”“What did they do for you?” I ask her.“It just went away.”

via Medical Mysteries: The woman in the chair – Health & wellness – The Boston Globe.

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Posted by on November 29, 2013 in Disability, health, IBM


My ramblings of a mad world we live in. And some other helpfull topics will be added from time to time.

Gingers, Poetry, Nonsense, Red Hair, Hope, Sausages

Unbagging the Cats

Myositis is a neuro muscular disorder

Get it. Write.

Your purpose in life is to find the purpose of life.

Lynette Noni

Embrace The Wonder


Poems and Ponderings by Jake

Desire Says ...


AllThingsBoys Blog

Humor in the Humorless


You - philosophical, thoughtful, witty. Me - still thinks fart jokes are funny. We should DEFINITELY get together!


I write, I read . . . and I eat chocolate - probably more than I should . . . the chocolate that is


Pondering lifes blessings one memory at a time

Menimèse Creare

Days of Yore & More


Crazy is relative. Just ask my relatives. And music!

renxkyoko's space

Just another site

Pushing on a Rope

Working my way through midlife, one laugh at a time

The Chatter Blog

Living: All Day Every Day: Then Chattering About It


A frustrated writer, who is her own worst enemy

Gobetween Flames site about my life and interests.

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